I haven’t written much about HIV/AIDS on this blog for a few
reasons. First, I don’t feel like I have
the knowledge to write helpful posts on the topic. Second, while this is an important topic, it
hasn’t been a particular focus at New Direction. And third, I do not want to perpetuate the stereotype
that HIV/AIDS is a gay disease. Hopefully most people recognize by now that
HIV/AIDS is transmitted in a number of different ways and is a risk that
crosses all social, economic, racial and orientation lines.
But we received an email today that offered the opportunity
for me to respond:
“I have used your
resources in the past when my brother came "out" to my parents. I am
SO thankful for your organization!
My brother was recently diagnosed as HIV+ and I wondered if you can direct me to any resources that deal with this? Not so much the medical side of things, but questions like, "Why is God punishing me?", "Why did God allow this to happen to me", "Can I be forgiven?”
My brother was recently diagnosed as HIV+ and I wondered if you can direct me to any resources that deal with this? Not so much the medical side of things, but questions like, "Why is God punishing me?", "Why did God allow this to happen to me", "Can I be forgiven?”
When I read an email like this, a number of things flash
through my mind. I remember the first
time I heard about AIDS. I was in a
phys. ed. class at my Christian high school.
It was the mid-eighties. A video
clip was shown in which a gay man was talking about his illness. One of my classmates burst into tears and
rushed out of the room. The man in the
video was her uncle. She did not know
that he was gay or that he had, since the video’s release, died of AIDS. She’d been told he died of cancer. I can remember the shock going through the
room. And I remembered at the time how
angry I felt that this girl’s family had been too embarrassed to be honest with
her and tell her the truth. I didn’t
know that much about homosexuality back then, but I knew enough to be outraged
that someone’s family would be so ashamed of them as to lie.
And I remember hearing about outrageous things Christian
leaders said at the height of the AIDS crisis about God’s punishment and
judgment. Even though still a teenager,
I remember thinking that this couldn’t be true.
If God punished people for their sin by inflicting disease, then people
who were greedy in the face of the Ethiopian famine should have been struck
down too. I could sense that those
Christian leaders on TV were speaking with an attitude and tone that didn’t
seem very Christ-like to me.
I also remember hearing from so many individuals, from
Exodus circles, to Gay Christian network connections, to gay people through
social media, and personal friends, who expressed pain over these very public
judgments many years after the original utterances. The sense of condemnation ran so very deep.
I heard leaders, including myself, who spoke out and
challenged the church to reach out with love and compassion after having missed
such a tremendous opportunity when AIDS was creating such alienation and
panic. The church got it so terribly
wrong then – but we needed to step up and take advantage of the opportunities
in front of us today to reach out and engage LGBT people with the love of
Christ.
As these thoughts flash through my mind, I can’t help but
feel deep sadness that a young man, raised in the Christian community, is
reaping the failure that the church sowed nearly 30 years ago. Of course, when anyone receives such an
overwhelming diagnosis, whether it is HIV or some other devastating disease, it
is normal to ask the kind of questions the email raises. In many ways, these are the common questions
of grief. But I don’t know how many
people diagnosed with cancer ask, “Can I be forgiven?” as part of the grieving
process.
Grieving is an individual and unique process. There is no formula or recipe to get through
the difficult process of coming to terms with loss. While there are some general descriptive
stages that help us to understand the grieving process, they are not linear or
predictable progressions.
When grieving,
people will go back and forth between stages.
These stages include:
· Denial & Isolation: Often, the first reaction is to deny the reality of the situation. It is a normal
reaction to rationalize overwhelming emotions. Denial is a common defense
mechanism used to buffer the immediate shock. This is usually a temporary
response that carries us through the first wave of pain.
· Anger: As the masking effects of denial and
isolation begin to give way, reality of the situation and its pain re-emerge. Usually,
we are not ready to face the pain. The intense emotion is deflected from our
vulnerable core, redirected and expressed instead as anger (which is almost always
a secondary emotion). The anger may be directed at almost anything or anyone –
and may not seem to make sense. In our
minds, we know this shouldn’t be the focus of blame. But emotionally, we feel
resentment and don’t know what to do with it.
Often we feel guilty for being angry, and this makes us more angry. When we find ourselves in this angry phase,
it is important to try to be present to the anger, to remember it is a cover
for our pain, to be gentle with ourselves, and to give ourselves the time we
need.
· Bargaining: The
normal reaction to feelings of helplessness and vulnerability is often a need
to regain control. We can find ourselves
going over and over in our mind what we might have done differently that might
have influenced the current outcome we are facing. We may make a deal with God in an attempt to
postpone the inevitable. All of this is just another way we try to protect
ourselves from the painful reality we are facing.
· Depression: There can be two types of depression experienced
when we are grieving. The first one is a
reaction to practical implications relating to the loss and result in feelings
of sadness and regret. These feelings may be eased and managed by obtaining
clarification and reassurance. Helpful cooperation and a few kind words from
those around us can be really helpful. The second type of depression may be
more subtle and, in a sense, perhaps more private. It is our quiet preparation
to in the face of loss. Sometimes what will serve us best is a hug and simply
knowing that someone is present with us.
· Acceptance: Depending on how much time people have for
grieving, this may be an unreachable gift. It should
be noted that it is not necessarily a mark of bravery to resist the inevitable
and to deny ourselves the opportunity to come to a place of peace. Acceptance
may be marked by withdrawal and calm. Acceptance is not a period of happiness
but of rest.
Navigating the reality of loss
is ultimately a deeply personal experience — nobody can make the process easier
for you or be fully able to understand all the emotions that you’re going
through. But others can be present with you and offer a sense of comfort. The wisest
thing to do is to allow yourself to feel the grief as it comes over you.
Resisting it only will prolong moving through the stages and coming to a place
of rest and peace. Grief is messy and
chaotic – there isn’t anything pretty about it.
Appearances should be put on the back shelf, they have little to
contribute to moving through this process towards healing.
Unfortunately, many people do not know how to simply be present
or offer comfort. They may also be
grieving the reality you are facing and be too overwhelmed by their own denial,
anger or bargaining to be of much support to you. Or your grief may trigger their own fears,
anxieties, memories or sense of loss.
People tend to panic in the face of a situation they cannot control and
may express this by giving unsolicited (and often unhelpful or even downright
hurtful) advice. They may not be able to
get past their own opinions about what should have or could have been done
differently.
It is unfortunate that someone who is grieving needs to take on the
extra burden of needing to maintain boundaries with unhelpful or hurtful people
– but this is sometimes a necessity. If
you are someone who is seeking to support someone as they’re grieving, you may
want to encourage and help them in keeping such boundaries.
In my doctoral cohort, one student is focused on introducing the
cursing Psalms into personal and communal worship. In the Roman Catholic church, these Psalms
are no longer read in public worship because of the strength of the language
and images they employ. However, for
people who have suffered, for people who are grieving, for people who are angry
at God, for people who have trouble expressing their emotions to God, these
Psalms offer great depth and permission.
Consider Psalm 55:
Listen to my prayer, O God,
do not ignore my plea;
hear me and answer me.
My thoughts trouble me and I am distraught
because of what my enemy is saying,
because of the threats of the wicked;
for they bring down suffering on me
and assail me in their anger.
do not ignore my plea;
hear me and answer me.
My thoughts trouble me and I am distraught
because of what my enemy is saying,
because of the threats of the wicked;
for they bring down suffering on me
and assail me in their anger.
My heart is in anguish within
me;
the terrors of death have fallen on me.
Fear and trembling have beset me;
horror has overwhelmed me.
I said, “Oh, that I had the wings of a dove!
I would fly away and be at rest.
I would flee far away
and stay in the desert;
I would hurry to my place of shelter,
far from the tempest and storm. ”
the terrors of death have fallen on me.
Fear and trembling have beset me;
horror has overwhelmed me.
I said, “Oh, that I had the wings of a dove!
I would fly away and be at rest.
I would flee far away
and stay in the desert;
I would hurry to my place of shelter,
far from the tempest and storm. ”
Lord, confuse the wicked, confound their words,
for I see violence and strife in the city.
Day and night they prowl about on its walls;
malice and abuse are within it.
Destructive forces are at work in the city;
threats and lies never leave its streets.
for I see violence and strife in the city.
Day and night they prowl about on its walls;
malice and abuse are within it.
Destructive forces are at work in the city;
threats and lies never leave its streets.
If an enemy were insulting me,
I could endure it;
if a foe were rising against me,
I could hide.
But it is you, a man like myself,
my companion, my close friend,
with whom I once enjoyed sweet fellowship
at the house of God,
as we walked about
among the worshipers.
I could endure it;
if a foe were rising against me,
I could hide.
But it is you, a man like myself,
my companion, my close friend,
with whom I once enjoyed sweet fellowship
at the house of God,
as we walked about
among the worshipers.
Let death take my enemies by surprise;
let them go down alive to the realm of the dead,
for evil finds lodging among them.
let them go down alive to the realm of the dead,
for evil finds lodging among them.
As for me, I call to God,
and the Lord saves me.
Evening, morning and noon
I cry out in distress,
and he hears my voice.
He rescues me unharmed
from the battle waged against me,
even though many oppose me.
God, who is enthroned from of old,
who does not change—
he will hear them and humble them,
because they have no fear of God.
and the Lord saves me.
Evening, morning and noon
I cry out in distress,
and he hears my voice.
He rescues me unharmed
from the battle waged against me,
even though many oppose me.
God, who is enthroned from of old,
who does not change—
he will hear them and humble them,
because they have no fear of God.
My companion attacks his friends;
he violates his covenant.
His talk is smooth as butter,
yet war is in his heart;
his words are more soothing than oil,
yet they are drawn swords.
he violates his covenant.
His talk is smooth as butter,
yet war is in his heart;
his words are more soothing than oil,
yet they are drawn swords.
Cast your cares on the Lord
and he will sustain you;
he will never let
the righteous be shaken.
But you, God, will bring down the wicked
into the pit of decay;
the bloodthirsty and deceitful
will not live out half their days.
and he will sustain you;
he will never let
the righteous be shaken.
But you, God, will bring down the wicked
into the pit of decay;
the bloodthirsty and deceitful
will not live out half their days.
But as for me, I trust in you.
One of the most effective ways the
enemy of our souls has to distract us from trusting in God is to accuse
us. When we are vulnerable to that sense
of accusation, our guilt, anger and pain keep us from resting in the security
of God’s love and grace for us.
Questions like the ones asked in the email may be a complex combination
of our own grieving and the accusing whispers of the enemy. "Why is God punishing me?", "Why did God allow this to
happen to me", "Can I be forgiven?”
To combat the power of such thoughts, we first of all
identify them for what they are:
grief + accusation = loss of peace and inability to rest in
trusting God. When we know what we are dealing with, we can
begin to take concrete steps to address it.
Secondly, we give ourselves permission and space to express
the emotions that connect to these thoughts: our pain, our fear, our anger, our
worry, our sadness etc. Remember the
Psalm. There is no need to hold back in
expressing these emotions. God can
handle it. We don’t rush ourselves
through this phase –we are gentle with ourselves and we wait to seek creative
ways to allow these emotions expression.
Thirdly, we confront whether the statements are true. Is God punishing me – or is my experience
part of living in a broken world as a person with free will? Can I be forgiven –or is the truth that all
the sin of humanity past, present and future has already been taken to the
cross by Jesus and cancelled and forgiven – and my part is to accept and trust
that this is true? We may need to sit
in prayerful silence, inviting the presence of Jesus to work the truth past our
minds and into that deep place in our heart that is fearful and vulnerable to guilt
and accusation.
Fourth, we recognize that to move forward we must tackle the
challenge of acceptance and letting go.
The question “why” can haunt us forever if we do not take this
step. The reason the question has so
much power is that we can only respond to it with faith – not with
certainty. Faith tells me that God
loves me. Faith tells me that when I
hurt, God hurts too. Faith tells me that
God cares for me and is with me in all things.
Logic says God is all powerful and could have intervened if I mattered
to him, if he cared about me, if he loved me.
Logic says God is all powerful so since he didn’t intervene and prevent
this from happening he must have it in for me, is punishing me, or is
unloving. Logic says maybe God isn’t all
powerful. Logic says God is cruel and
not worthy of my worship. When we get to
this kind of impasse – where our faith is waning in trying to maintain a sense
of a loving and gracious God in the face of our logic which is concluding that
either God doesn’t love me or God isn’t really God, we can feel so hurt,
hopeless and angry.
But this competition
between faith and logic will not resolve our painful dilemma or bring us
peace. To break out of such an impasse,
we need to shift our focus. When the
scripts run over and over in our head, questioning the love and care of God, we
need to stop, become aware of the infinite loop, and ask ourselves, “What will
bring me peace right now?” Peace comes
when we recognize that our logic can only answer the question “why” if we let
go of our faith. And if we let go of our
faith, we will only experience a limited peace – because we will have lost our
connection with the Source of the peace that passes understanding. True peace comes when we accept that we
cannot fully and completely answer the “why” question this side of heaven. Peace comes when we acknowledge the limits of
our understanding and choose to believe that God is for us, even though we
cannot understand why he did not prevent the pain we are experiencing.
One of the scripts I use to replace the fearful, angry doubt
that can rise up when I am experiencing grief and accusation is to remind
myself, “Whom have I in heaven but you?” (Psalm 73). Even
in my pain and confusion, I would rather have God on my side than be left
simply to make myself my higher power. I
need Someone bigger, wise, more gracious and loving than I. I will choose to believe in this God – cling to
him even when I am angry with him, confused by his absence or fearful that he
has ceased to care for me – because my other alternative is to simply trust
myself and I know only too well how limited that will be. I have found that when I practice the script,
“Whom have I in heaven but you?” my faith is stirred up, the power of the
grief, accusations and emotions gives way to a quiet confidence that though I
do not understand, I will trust in the Lord.
Letting go of needing to know “why” is never an easy
task. Our pride, our sense of
entitlement can get in the way. It takes
hard work, focus and determination to replace the why script in our minds with
a script of acceptance and submission to the call of faith to believe that God
is good. But, if we seek to do this, the
power of the Holy Spirit will help us each step of the way.
To the writer of the email, I would say that it will take
much more than logic to find peace in the midst of such difficult
questions. But there is Someone who is
much more powerful than our logic – and his name is Jesus. He is for us.
Nothing can separate us from his love.
He gave up his very life, suffering on our behalf, to make us right with
God. He is the One who holds the keys of
the Kingdom. He is able to give life
where there is hopelessness and despair.
He brings light where there is darkness.
He gives strength to the weary and peace to those who are
distressed. And in ways beyond our
understanding, God does work all things together for our good. It would be my prayer that this individual
who has received the diagnosis would find a depth of life and peace in Christ
that he has never experienced before.
-WG
-WG

I love a great deal of what you said here, Wendy. However, there's a quality to both your post and the email you received that leaves me feeling like I need to point out that living with HIV today -- while certainly still no picnic -- is not what it was like living with HIV in the 70's, 80's, and even 90's. Thanks to better medical knowledge that allows us to both track viral loads and keep a person's viral load down via medication, many people are living for decades after finding out they're positive. (Granted, this also assumes you have access to the necessary medical care, which is a huge issue in its own right here in the United States.)
ReplyDeleteWhen I read emails like the one you received and your response, it seems to me that there's still that underlying sense that becoming HIV-positive is an almost immediate death sentence, which I think plays into the kinds of questions people ask.
I certainly empathize with this man and his family, as despite the fact that his prognosis is much better than it would have been a decade or so is ago, it's still a horrible thing to discover you have to live with. But I hope he does remember that thankfully, living with it is now a much more realistic option.
Thanks Jarred - I totally agree with you. Because I wanted to focus on the spiritual, emotional, mental process that emerges out of those kinds of questions, I didn't include a section that discussed the current prognosis for HIV infection. There is much better news today far and away from the early days of the crisis. But, by putting that in, it can almost seem like minimizing the very real grieving process the people can go through when they're asking questions about where God was or why he didn't prevent this. But I appreciate you including it here in the comments section.
ReplyDeleteSo is that what it takes to be a Christian? Putting aside every logical, sensible, organized thought in your head for a single mantra: "Jesus loves me, yes I know, for the Bible tells me so..."?
ReplyDelete